Over the weekend K was able to patch up the section of roof that was peeling off, mow the front yard, and mow the leach field out back. He also did alot of front-yard baseball with the girls, and we all went to Greeley on Sunday for his real baseball game. Then he let me know in his own subtle way that he'd be leaving for a 3-day trip to Jackson.
So he was able to make it to Cheyenne with me and baby for my appointment today before the Jackson flight. This time I saw the rheumatologist, who made some adjustments in my medication dosages and explained some high and low lab values. He said my lupus flare is pretty much over, and now we need to focus on my lung problems. There was no discussion this time about moving to a lower altitude... That can wait a bit longer.
I got a prescription for Boniva, which is to fight osteoporosis, another side effect of the prednisone. When I filled the prescriptions later today at Safeway, I paid a total of $70 for 4 meds - then got home and realized that the ONE Boniva pill costs $40!!!! It's one pill, in a fold-out cardboard holder, to be taken once a month... and it costs about what I've paid to have my hair done in the last year! (my hair looks like crap) There was a $20 coupon with it but the pharmacist couldn't get the computer to accept it.
Somewhere between the appointment, picking up the girls, getting T to her new ballet class, saying goodbye to K, and getting dinner together, I made it to the oxygen place to get set up with the full-time O2 stuff. It turned into one of those moments of realizing I had never, ever imagined myself doing what I was doing. Refereeing two cat-fighting daughters and bouncing a baby around, while fitting tubes in my nose and a portable oxygen pack on my shoulder was just... bizarre.
So now I'm enjoying a little peace while the kids sleep. Tomorrow starts early with soccer camp for T and ballet for LittleK, then playgroup and an attempt at laundry.
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