Yeah, that's right, I misplaced a bottle of Revatio, which is just a polite alternative name for Viagra, which I take for pulmonary hypertension. I know you're thinking, yeah, sure, Ginny...
Anyway, in my chaotic daily life as mom/chauffeur/really bad housekeeper, I somehow came up short about 40 Revatio pills. It's silly - I think I had them in the car one day, I think I threw away an empty (but was it?) bottle another day. So I called the specialty pharmacy to replace the missing medication, and found out my monthly supply of 90 pills would normally cost $900 !!!!!
Insurance pays for it, except for a $20 co-pay. Wow. I guess our insurance company rep was having a good-karma day because they decided to pay for my replacement stuff. I'm just a bit embarrassed cuz who's going to believe that I lost my Viagra...
Halloween's coming up. So is my birthday! LittleK wants to use her lion suit from 2 years ago, and T just wants to be a black cat. We found a panda suit for R's costume. I'll be the oxygen lady.
Speaking of oxygen, Lincare has set me up with a portable liquid O2 system. It just means that the little bag on my shoulder is much lighter, the supply lasts longer (8hrs), and it makes a loud PUFF noise when I inhale. The girls say it sounds like I'm spitting. The metal tanks are heavier, last about 4 hours, and only make a tiny 'click' when I breathe in.
T had her presentation today, about Chief Joseph. She (and I) made a poster, wrote out 9 facts on index cards, practiced, and argued over what to wear. She does well speaking in front of the class - this year it's just harder to understand her because she's mithing tho many teeth.
....laundry, dishes, messes beckon...
Thursday, October 26, 2006
Friday, October 13, 2006
new niece!
I think I've fallen out of the habit of updating.
My sister just had a baby!!!! Welcome baby Delaney!
K's mom is home from a big trip to Europe, and she sounds like she's doing well after some difficulties on the way home. Time to heal.
The seasons have definitely changed... we have to wear socks and jackets every day now. I'm really tired of the wind, haha. In the car I crank up the heat until LittleK whines "MAMA I'M HOT!"
BabyR is cutting four teeth on the top and one on the bottom, all at once. Ouch, huh? I love his funny toothless grin but won't see it again unless he takes up hockey.
K is done with bow-hunting and now rifle season has started. Hooray. He has a race tomorrow morning (Silent Trails Memorial) during the girls' final soccer games. Then more hunting on Sunday.
I've got a clutter problem and I've been preoccupied with it lately, but not enough to do anything about it. It's just another way of heaping on the guilt, on top of all the mommy-guilt etc.
T has glasses (bifocals!) for reading and schoolwork. She lost them today and didn't tell me until nearly 5 o'clock, but the principal was still at the school and we made it there before she left. The glasses were in the coat closet. I can deal with T's problems so much better than LittleK's because K's whining just pushes the big anger button inside of me and I lose patience. She seems to be really horrible only around late afternoon, when she's fighting a nap.
I'm pretty much done with all the nasty steroid side-effects. I'm only on 2mg a day! I feel normal except for my hip and shoulder pain. My hair falls out in big fistfuls, hopefully that will stop soon.
What's funny is that it's been about 4 months of having oxygen all the time, and only three strangers have blurted out big nosy questions. One Safeway cashier practically yelled at me "What's wrong with you??". I told him I have heart & lung diseases, and I herded the kids out the door. Another (elderly) oxygen user at WalMart looked at me with a big sad face and said, "This? At your age? Awwww". I just laughed and said I was used to it. That same day, some teenager at Burger King yelled across the room "HEY why are you on OXYGEN??". I just told him I got sick. So I just have to remember how weird it must be to see some young-ish mom doing mom-stuff out in public wearing a nasal cannula and herding two chatty girls and a baby around.
Anyway, the only news on that front is that my appointment with the PH specialists in Denver will be December 12th. It seems so far away.
Time to go cuddle up in a blanket and knit.
My sister just had a baby!!!! Welcome baby Delaney!
K's mom is home from a big trip to Europe, and she sounds like she's doing well after some difficulties on the way home. Time to heal.
The seasons have definitely changed... we have to wear socks and jackets every day now. I'm really tired of the wind, haha. In the car I crank up the heat until LittleK whines "MAMA I'M HOT!"
BabyR is cutting four teeth on the top and one on the bottom, all at once. Ouch, huh? I love his funny toothless grin but won't see it again unless he takes up hockey.
K is done with bow-hunting and now rifle season has started. Hooray. He has a race tomorrow morning (Silent Trails Memorial) during the girls' final soccer games. Then more hunting on Sunday.
I've got a clutter problem and I've been preoccupied with it lately, but not enough to do anything about it. It's just another way of heaping on the guilt, on top of all the mommy-guilt etc.
T has glasses (bifocals!) for reading and schoolwork. She lost them today and didn't tell me until nearly 5 o'clock, but the principal was still at the school and we made it there before she left. The glasses were in the coat closet. I can deal with T's problems so much better than LittleK's because K's whining just pushes the big anger button inside of me and I lose patience. She seems to be really horrible only around late afternoon, when she's fighting a nap.
I'm pretty much done with all the nasty steroid side-effects. I'm only on 2mg a day! I feel normal except for my hip and shoulder pain. My hair falls out in big fistfuls, hopefully that will stop soon.
What's funny is that it's been about 4 months of having oxygen all the time, and only three strangers have blurted out big nosy questions. One Safeway cashier practically yelled at me "What's wrong with you??". I told him I have heart & lung diseases, and I herded the kids out the door. Another (elderly) oxygen user at WalMart looked at me with a big sad face and said, "This? At your age? Awwww". I just laughed and said I was used to it. That same day, some teenager at Burger King yelled across the room "HEY why are you on OXYGEN??". I just told him I got sick. So I just have to remember how weird it must be to see some young-ish mom doing mom-stuff out in public wearing a nasal cannula and herding two chatty girls and a baby around.
Anyway, the only news on that front is that my appointment with the PH specialists in Denver will be December 12th. It seems so far away.
Time to go cuddle up in a blanket and knit.
Tuesday, October 03, 2006
altitude confusion
Bill-paying day. Now we have $500 propane payments every month on top of everything else...
I saw the cardiologist on the 26th and asked again about the altitude effects. He's the one who initially said I should move ASAP to somewhere with more oxygen in the air. Now he says the supplemental 02 I have is compensating for living at high altitude. So both K & I are confused. All four doctors seem to change their minds about it each time we see them! I'm still pretty much set on moving to Anchorage.
Tomorrow I have an appointment with the internist. Since my pulmonologist in Cheyenne is leaving private practice and cancelled my November 30th appointment, I'll see if this local guy will refer me to the PH specialists in Denver. I'm curious to see if they'll do a heart cath for an exact arterial pressure, and if there's a drug trial they might be able to enroll me in. It would be good to get their opinion on the altitude thing too.
Now to begin another playgroup/ballet/soccer day!
I saw the cardiologist on the 26th and asked again about the altitude effects. He's the one who initially said I should move ASAP to somewhere with more oxygen in the air. Now he says the supplemental 02 I have is compensating for living at high altitude. So both K & I are confused. All four doctors seem to change their minds about it each time we see them! I'm still pretty much set on moving to Anchorage.
Tomorrow I have an appointment with the internist. Since my pulmonologist in Cheyenne is leaving private practice and cancelled my November 30th appointment, I'll see if this local guy will refer me to the PH specialists in Denver. I'm curious to see if they'll do a heart cath for an exact arterial pressure, and if there's a drug trial they might be able to enroll me in. It would be good to get their opinion on the altitude thing too.
Now to begin another playgroup/ballet/soccer day!
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