without my spouse: 5
until spouse returns: 4 or 5
until we upgrade to 1100 square feet: 12
since my car broke down: 55
since my car was towed to the shop: 44
It's been the typical week of soccer, ballet, girl scouts, eat, sleep, repeat. Yesterday R and I had a little change in the routine with a quick trip into Anchorage for my Every 3 Months PH Checkup. I tipped the scales at 49 kg. The nurse asks a bunch of questions written for people with autoimmune arthritis problems (not me), I scribble a list of my current meds, the doctors come in and review the most recent CT/echo/lab results, listen to my lungs, let me ask questions, then it's over. They're so happy I have energy and seem like a normal person, and they have a hard time not teasing me about how exacting and over-informed I am. They poke fun at the notebook I usually carry with copies of all my test results... I didn't have it yesterday because I'm done stressing out about every last detail. It's time to coast for a bit.
I did ask about Bosentan, a newer PH drug which the hospital has finally added to their list of meds they'll pay for. The pulmonologist said that the path we're walking right now is one of immune-suppression with Cellcept, and not one of Bosentan-type drugs which have added side effects. I guess the focus is more on my 'functional class' or quality of life than it is on doing whatever it takes pharmacologically to decrease the pressure in my pulmonary artery.
Our mortgage loan was approved! We will close on February 25th.
The kids and I visited the minivan today. It's parked behind the dealership with the hood open and some big lock and chains fastened to the engine. I had to take some things out of the back of it and put something else in, since it's at least good for storage at this point. The guy who came to help me tried explaining how the ownership change at the dealership caused all of the parts in the service department to disappear (yes he actually said that), and I could only manage a shrug and an "I don't care anymore." I wonder if reducing myself to tears would have helped.
Thank you to Grandpa Jerry for the supply of wild rice ~ Happy Belated Birthday to Wilson ~ Happy First Birthday to Orson ~
And, of course, Happy Valentine's Day.
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