This morning after K left (why do university people have to fly on weekends?) - the two younger kids and I went to pick up T from her best friend's house. They had a sleepover for the friend's birthday and had a blast, giggling, eating, talking, playing and not sleeping much.
We went to a community Christmas celebration at the fine arts museum. The kids were only slightly bored doing holiday crafts and listening to pianists, guitarists, choirs and school orchestras. I got tired of it all pretty quickly because I didn't bring the stroller. It was a crappy day anyway because it started with a loud and prolonged temper tantrum by LittleK. Her tantrums feel like physical and emotional assaults and it takes some time for us all to recover. This one was about her clothes... I will usually let her dress herself no matter how crazy it looks but not today, not a ragged blue cardigan underneath a red velvet dress with pink and white light-up shoes.
Healthwise, I did see the rheumatologist last week, and there was nothing new to talk about. He did say that how lupus affects an individual doesn't usually change over time. In other words, it's not likely that it will attack my nervous system or my kidneys - it will probably just attack my lungs and heart more, if and when it does flare again. I'll be seeing a PH specialist at the university hospital in Denver on the 12th, so who knows, it may be another ten days before I update this again. Thanks for checking in!
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