I'm up late, it's been a long day but there was one last load to dry. It's been a long week, actually.
I think I forgot to mention how my appointment went last month. The biggest issue was reducing the number of meds I'm on, and since my pulmonologist says my PH is autoimmune-related, she's taking me off of Revatio (vi-vuhhhh, viagra) and sticking with Cellcept. The rheumatologist also decided to discontinue Fosamax and not do Reclast at all, since I'm not at very high risk for an osteoporotic fracture (yet). I have low bone density in my spine, but not my hips. So I got a reminder to keep up with calcium and a scolding for flaking out on Advair.
Two weeks later I had a follow-up 6-minute walk after reducing the Revatio dose, and I did better than I've done, ever, on a 6MWT. I walked over 2000 feet, and I stayed at 100 on my O2 sat. I have to repeat the walk next week I think. It means I get to joke around with Ray, the Respiratory Therapist. Or talk politics and religion.
We've been busy! The school had some fun events (movie night, Dr. Seuss' Birthday, Pastries for Parents) during the week before Spring Break. On Saturday, we visited Nanny in Anchorage for her 84th birthday, and we also stomped around 4th Avenue to watch some of the Iditarod's ceremonial start.
On Sunday, we drove out to Nancy Lakes Recreation Area and snowmachined in to Red Shirt Lake to camp in a public-use cabin that K rented for two nights. I think it was supposed to be an idyllic, peaceful wilderness experience, but the offspring saw it as an opportunity to sound their barbaric yawps over the roofs of the world.
The day after the Red Shirt trip was done, T had a soccer scrimmage... On Thursday, K and the girls headed back to Nancy Lakes for an overnight snow-shelter-building adventure. The spot they chose wasn't fit for an actual snow cave, but they dug a big hole, and used a lovely blue tarp for a roof!
Today I let the kids loose at Rascals, an indoor jumping-playground. That was a very long hour and a half but it was well worth it. The best part of it wasn't jumping at all but riding in circles on the Plasmacars. AND FINALLY, we met up with Brenna and her boys (yay! cousins!) at the Wasilla Pool for a couple of hours of splashing around. R only lasted until his lips got blue, but the girls and their cousins were the last ones out of the pool.
Now, I think I need to sleep for a couple of days.
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