Happy Birthday W!!!!
I rescheduled my rheumatologist & pulmonologist appointments from yesterday to August 31st. K wanted to be there but had to fly all day yesterday. We were sort of confused about why they wanted me to have the appointments in the first place... I think I need to set up another echocardiogram (or maybe a right heart cath?) between now and the 31st, so the docs and I will have something to talk about.
I've been kinda flaky with my medicine. I also still go without the tube up my nose once in awhile. I could probably eat healthier food... but at least I got a start on the exercise idea. I bought a jogging stroller to walk R around our neighborhood loop, which is a dirt road not compatible with the mini-stroller I use everywhere else. Our friend offered me her jogging stroller, so I took the other one back to the store. Now I just need to replace the inner tube on the friend's stroller. Maybe someday soon my thigh and butt muscles will make a reappearance.
This past week I got onto a web-board for people with pulmonary hypertension. http://www.phcentral.org Some of the people there have been surviving for 5 or more years since diagnosis! So that gives me some hope- especially with the newer medications that are coming out, Tracleer and Thelin.
We've been gearing up for school and for birthday parties. I still haven't enrolled LittleK anywhere, but her old school has her on their roster. We may keep her there, but I just don't know if I want to be that involved anymore. I did get the girls signed up for soccer. It'll be LittleK's first year and T's third I think.
That's about all of the really fascinating stuff going on around here.
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