without my spouse: 5
until spouse returns: 4 or 5
until we upgrade to 1100 square feet: 12
since my car broke down: 55
since my car was towed to the shop: 44
It's been the typical week of soccer, ballet, girl scouts, eat, sleep, repeat. Yesterday R and I had a little change in the routine with a quick trip into Anchorage for my Every 3 Months PH Checkup. I tipped the scales at 49 kg. The nurse asks a bunch of questions written for people with autoimmune arthritis problems (not me), I scribble a list of my current meds, the doctors come in and review the most recent CT/echo/lab results, listen to my lungs, let me ask questions, then it's over. They're so happy I have energy and seem like a normal person, and they have a hard time not teasing me about how exacting and over-informed I am. They poke fun at the notebook I usually carry with copies of all my test results... I didn't have it yesterday because I'm done stressing out about every last detail. It's time to coast for a bit.
I did ask about Bosentan, a newer PH drug which the hospital has finally added to their list of meds they'll pay for. The pulmonologist said that the path we're walking right now is one of immune-suppression with Cellcept, and not one of Bosentan-type drugs which have added side effects. I guess the focus is more on my 'functional class' or quality of life than it is on doing whatever it takes pharmacologically to decrease the pressure in my pulmonary artery.
Our mortgage loan was approved! We will close on February 25th.
The kids and I visited the minivan today. It's parked behind the dealership with the hood open and some big lock and chains fastened to the engine. I had to take some things out of the back of it and put something else in, since it's at least good for storage at this point. The guy who came to help me tried explaining how the ownership change at the dealership caused all of the parts in the service department to disappear (yes he actually said that), and I could only manage a shrug and an "I don't care anymore." I wonder if reducing myself to tears would have helped.
Thank you to Grandpa Jerry for the supply of wild rice ~ Happy Belated Birthday to Wilson ~ Happy First Birthday to Orson ~
And, of course, Happy Valentine's Day.
Thursday, February 14, 2008
Sunday, February 10, 2008
oh patience
We've signed many documents and are under contract to buy the house - but the seller keeps listing it on craigslist. Maybe that's normal but it just makes me uncomfortable. The only delay we've come across has to do with the appraisal, which should be completed next week. I'm weary of the process and ready to put some space between us, lenders, and sellers.
The Mamavan Saga rolls on and on... The mouthpiece of the service department, Ken, tells me (when I pester him every other day) that "the parts are not all here yet," and "I've ordered the parts, hopefully they'll get here next Monday, then your car will be done the next day," and "we found a new problem we didn't notice at first so we had to order another part..." Puh-leeez.
5 eskimos will fit into a Ford Ranger but you won't see a smile on any of their faces. Especially not after 37 days.
The Mamavan Saga rolls on and on... The mouthpiece of the service department, Ken, tells me (when I pester him every other day) that "the parts are not all here yet," and "I've ordered the parts, hopefully they'll get here next Monday, then your car will be done the next day," and "we found a new problem we didn't notice at first so we had to order another part..." Puh-leeez.
5 eskimos will fit into a Ford Ranger but you won't see a smile on any of their faces. Especially not after 37 days.
Wednesday, February 06, 2008
Thursday, January 31, 2008
house news
We made an offer yesterday on a house that's about 5 miles down KGB road. The offer was accepted and now we're heading towards closing.
...from Little House on the Prairie to Little House in the Big Woods.
It's cute and brand new and by the end of February, it should be ours. Yay!
There are three bedrooms and two full baths. The house faces south and sits on an acre with verrry tall trees. The original buyer chose some nice upgrades before her financing fell through. Immediate needs are a refrigerator and a washer/dryer set. In the spring we'll do something about the yard, and next year we'll add a garage. For now, the crawlspace will probably fit 90% of our junk.
The girls will finish out this school year at Cottonwood, but transfer to KGB Elementary in the fall.
More good news: the van should be done tomorrow! So everything's falling into place.
...from Little House on the Prairie to Little House in the Big Woods.It's cute and brand new and by the end of February, it should be ours. Yay!
There are three bedrooms and two full baths. The house faces south and sits on an acre with verrry tall trees. The original buyer chose some nice upgrades before her financing fell through. Immediate needs are a refrigerator and a washer/dryer set. In the spring we'll do something about the yard, and next year we'll add a garage. For now, the crawlspace will probably fit 90% of our junk.
The girls will finish out this school year at Cottonwood, but transfer to KGB Elementary in the fall.
More good news: the van should be done tomorrow! So everything's falling into place.
Tuesday, January 29, 2008
houses viewed so far: 4
I need to find Dr. Phil's Guide to Home-Buying. He's written one by now, right?
"Stop measuring your self-worth as a function of..."
...what size house you can afford to buy
...what neighborhood you settle for
...whether or not you have a garage, landscaping, a backyard playset blah blah blah
This is stressful. Maybe if I look hard enough I can find my yoga DVD.
"Stop measuring your self-worth as a function of..."
...what size house you can afford to buy
...what neighborhood you settle for
...whether or not you have a garage, landscaping, a backyard playset blah blah blah
This is stressful. Maybe if I look hard enough I can find my yoga DVD.
Sunday, January 27, 2008
wide angle
There have been countless factors which brought our little family to where we are today. It's easy to see (and write) using this close-up, critical point of view... but I need to say that yes, I do see the big picture, no matter how much I luuuuv complaining about apartment life or finances.
K sacrificed a job and lifestyle he loved so that I can be healthier. LittleK and R don't suffer much from our big move, but T has an obvious, daily sadness about her because she left so many meaningful people and things behind. Not a week goes by without her reminding us that she will one day live in a house on the prairie again, with her own horses, next door to her best friend.
So, laugh with me about the neighbors, the van, the dog and all of my other microscopic problems... and understand the gratitude I have to just be alive, with the people who luuuuuv me so much.
K sacrificed a job and lifestyle he loved so that I can be healthier. LittleK and R don't suffer much from our big move, but T has an obvious, daily sadness about her because she left so many meaningful people and things behind. Not a week goes by without her reminding us that she will one day live in a house on the prairie again, with her own horses, next door to her best friend.
So, laugh with me about the neighbors, the van, the dog and all of my other microscopic problems... and understand the gratitude I have to just be alive, with the people who luuuuuv me so much.
Wednesday, January 23, 2008
things that roar in the night
Um, it's 1 a.m. on a Wednesday and there's someone outside driving a truck through the parking lot, running a sand-spreader over the huge expanse of ice. It's louder than a lawnmower. What is it with this place?
Yes, I'm awake and blogging at 1 a.m. on a Wednesday but that's not as bizarre or annoying as the Phantom Sandman.
Happily, I can say we're one step closer to buying a Wasilla home which I guarantee will be nowhere near any huge icy parking lot. I also hope to be living far from pot-dealers, late-night bongo dudes and anyone with a pack-a-day habit. The step which brought us closer is the AHFC HomeChoice seminar I attended tonight. It's eight hours of solid, basic information for homebuyers (four hours over two evenings). It also gives us $250 off of one of the closing fees. So, yay for us.
Sunday in Anchorage turned into two days of visiting with my "Golovin Gramma", as we used to call her thirty years ago. Cousins, aunts, uncles, most of whom we see maybe twice a year were all there for dinner on Sunday. We got to hear special stories from Nuz' childhood and learn Inupiaq and Yup'ik phrases like gussangnaghakmakut (ah, these half-breeds are no good) and one other one that means "feathers will grow out of your (behind)". The comment about half-breeds was something that her mom said long before her own family was indundated with 'half-breeds'. My grandma grew up speaking both Inupiaq and Yup'ik, so the words that filter down to my generation are a rich, if confusing, mixture of both.
The skiing day was postponed until weather conditions are better. It may not happen until late in the ski season, actually.
This week is another big one for soccer, ballet, and Girl Scouts, including a sleepover with T's troop on Friday. The girls' school is having a 'Family Dance' that same night, since the P.E. teacher has taught all the upper grades how to do the Macarena and the Electric Slide. Our daughter has already expressed her distaste for that whole prospect. We also have to chat with a mortgage lender on Thursday in Anchorage. I got so used to sitting on the couch reading that I'm finding it hard to be productive again. (wait, was I ever?)
Maybe I'll stay up a little longer to see the next float in the Parking Lot Parade.
Yes, I'm awake and blogging at 1 a.m. on a Wednesday but that's not as bizarre or annoying as the Phantom Sandman.
Happily, I can say we're one step closer to buying a Wasilla home which I guarantee will be nowhere near any huge icy parking lot. I also hope to be living far from pot-dealers, late-night bongo dudes and anyone with a pack-a-day habit. The step which brought us closer is the AHFC HomeChoice seminar I attended tonight. It's eight hours of solid, basic information for homebuyers (four hours over two evenings). It also gives us $250 off of one of the closing fees. So, yay for us.
Sunday in Anchorage turned into two days of visiting with my "Golovin Gramma", as we used to call her thirty years ago. Cousins, aunts, uncles, most of whom we see maybe twice a year were all there for dinner on Sunday. We got to hear special stories from Nuz' childhood and learn Inupiaq and Yup'ik phrases like gussangnaghakmakut (ah, these half-breeds are no good) and one other one that means "feathers will grow out of your (behind)". The comment about half-breeds was something that her mom said long before her own family was indundated with 'half-breeds'. My grandma grew up speaking both Inupiaq and Yup'ik, so the words that filter down to my generation are a rich, if confusing, mixture of both.
The skiing day was postponed until weather conditions are better. It may not happen until late in the ski season, actually.
This week is another big one for soccer, ballet, and Girl Scouts, including a sleepover with T's troop on Friday. The girls' school is having a 'Family Dance' that same night, since the P.E. teacher has taught all the upper grades how to do the Macarena and the Electric Slide. Our daughter has already expressed her distaste for that whole prospect. We also have to chat with a mortgage lender on Thursday in Anchorage. I got so used to sitting on the couch reading that I'm finding it hard to be productive again. (wait, was I ever?)
Maybe I'll stay up a little longer to see the next float in the Parking Lot Parade.
Saturday, January 19, 2008
pass the Tums
I admit it, I've been a lazy bum since K got back. He hasn't been called in for any flights, so we're getting some intensive Family Time this month. I hope it makes up a little for the No-Dad days on the girls' birthdays, Halloween, Thanksgiving, Christmas and New Year's Eve.
I haven't felt very well and haven't been eating much lately. Nothing smells, looks, sounds or tastes good! I spent the worst three days of it just reading Eragon on the couch. I also finished East, a retelling of an old Norwegian folk tale about a girl, a polar bear and some trolls. They're young-adult books I checked out from the library to read at the same time T reads them. I'm not sure about letting her read the ugly war stories in Eragon, but she's been able to process (slightly) similar stuff in the HP series and in the LOTR movies. My girls also get into Star Wars and have their own rendition of "LUKE.... I AM YOUR FAH-THUH."
R is making the occasional three-word sentence. It started last week with "DON'T DOO DAT!" He's slowly picking up on some beginning-sounds as well.
LittleK is reading, reading, reading! We love it.
The Busy Schedule Season is here: we had Movie Night at the school last night, we leave in about half an hour for the Girl Scouts Gymnastics Night, tomorrow we head to Anchorage to visit my Gramma Nuz at Mom & John's house, K's taking the girls to Alyeska for a ski-day tomorrow or Monday, I have a homebuyers' seminar next week, doctor appointments, and another bookorder to process next Thursday. There are too many things actually to mention right now and my brain is full.
We've got some prospects in the house-search. The loan we were pre-approved for will provide us with a house about the size of most of our family's and friends' garages.
Get sick, and the dream changes a bit.
I haven't felt very well and haven't been eating much lately. Nothing smells, looks, sounds or tastes good! I spent the worst three days of it just reading Eragon on the couch. I also finished East, a retelling of an old Norwegian folk tale about a girl, a polar bear and some trolls. They're young-adult books I checked out from the library to read at the same time T reads them. I'm not sure about letting her read the ugly war stories in Eragon, but she's been able to process (slightly) similar stuff in the HP series and in the LOTR movies. My girls also get into Star Wars and have their own rendition of "LUKE.... I AM YOUR FAH-THUH."
R is making the occasional three-word sentence. It started last week with "DON'T DOO DAT!" He's slowly picking up on some beginning-sounds as well.
LittleK is reading, reading, reading! We love it.
The Busy Schedule Season is here: we had Movie Night at the school last night, we leave in about half an hour for the Girl Scouts Gymnastics Night, tomorrow we head to Anchorage to visit my Gramma Nuz at Mom & John's house, K's taking the girls to Alyeska for a ski-day tomorrow or Monday, I have a homebuyers' seminar next week, doctor appointments, and another bookorder to process next Thursday. There are too many things actually to mention right now and my brain is full.
We've got some prospects in the house-search. The loan we were pre-approved for will provide us with a house about the size of most of our family's and friends' garages.
Get sick, and the dream changes a bit.
Sunday, January 06, 2008
The Return of the Dad
K got back on Friday night, after being gone for 21 days. He'd flown to Detroit, Albuquerque, Bangor, Opa Locka, Bogota Columbia, and probably a few other places. He and the crew had a lot of down-time in and near Miami, where the beaches were filled with "topless women and gay men".
I can't even express how much more relaxed and happy we all are with K home.
On New Year's Eve, the kids and I met Auntie Peggy, Uncle Pat and their girls downtown. T skated, K mostly fell down, and we all had fun, especially during the fireworks show. It was very crowded and pretty cold, but nothing like last year. After fireworks, we ate with Peg and then we all crashed Gramma & Grampy's New Year's Eve fiddle dance. Those folks are there to dance and have fun but they're as serious as if they were having a church service... Uncle Pat won a door prize, we sang Auld Lang Syne, and the kids' heads finally hit the pillows at about 2am.
The van's transmission is mostly likely "toast", as described by the service guy. They can't get a computer diagnosis on it because the wiring has a problem too. It's going to be expensive. But a mama needs her van, so we'll get it fixed and have it back in about two weeks. No sense entertaining new-car fantasies. Just new-house ones.
Time to knit, since I'm not the fight referee today.
I can't even express how much more relaxed and happy we all are with K home.
On New Year's Eve, the kids and I met Auntie Peggy, Uncle Pat and their girls downtown. T skated, K mostly fell down, and we all had fun, especially during the fireworks show. It was very crowded and pretty cold, but nothing like last year. After fireworks, we ate with Peg and then we all crashed Gramma & Grampy's New Year's Eve fiddle dance. Those folks are there to dance and have fun but they're as serious as if they were having a church service... Uncle Pat won a door prize, we sang Auld Lang Syne, and the kids' heads finally hit the pillows at about 2am.
The van's transmission is mostly likely "toast", as described by the service guy. They can't get a computer diagnosis on it because the wiring has a problem too. It's going to be expensive. But a mama needs her van, so we'll get it fixed and have it back in about two weeks. No sense entertaining new-car fantasies. Just new-house ones.
Time to knit, since I'm not the fight referee today.
Saturday, December 29, 2007
grumpy but grateful
Big THANKS to everyone for all the gifts, cards and calls. Gramma & Grampy deserve an extra big thank-you for letting us stay so many nights.
One special holiday gift was the time the kids got to be around their great-grandma Lena. Her Alzheimer's disease limits her experiences in so many ways now, but she still showers the little ones with love and attention.
The only drawback to holiday visits is that the cold germs and viruses are having big powwows too, smeared and coughed and sneezed between cousins, then passed on to the rest of us. I have to sneak-attack R to keep his nose (sort of) clean...
I have a feeling we may not see K until mid-January. The plans change on a daily basis. I don't know why the company bothers giving them estimated return dates! Spare the kids the disappointment please.
And give the wives some Paxil.
Happy New Year!
One special holiday gift was the time the kids got to be around their great-grandma Lena. Her Alzheimer's disease limits her experiences in so many ways now, but she still showers the little ones with love and attention.
The only drawback to holiday visits is that the cold germs and viruses are having big powwows too, smeared and coughed and sneezed between cousins, then passed on to the rest of us. I have to sneak-attack R to keep his nose (sort of) clean...
I have a feeling we may not see K until mid-January. The plans change on a daily basis. I don't know why the company bothers giving them estimated return dates! Spare the kids the disappointment please.
And give the wives some Paxil.
Happy New Year!
Tuesday, December 25, 2007
Thursday, December 20, 2007
no mamavan
Today was the last day of school for the girls before Christmas Break.
The morning routine went well, right up to carseat buckles, until I put the car into gear and it didn't go. It's been below zero for a few days, I don't know if the brakes froze (I looked it up, it could happen) or if the transmission is shot. What it meant at 8:50 am was that the four of us were walking to school, just like people used to do about a hundred years ago. I think the distance is about 5 or 6 city blocks, but it's no fun with bad lungs and a 2-year-old at 5 below.
I'd volunteered to help set up Christmas-party stuff anyway, so R and I stayed at school all day, up and down stairs, back and forth between the girls' classrooms. Santa showed up, little gifts were exchanged, movies watched, and everybody loved having R around. He was waaaay too distracted to nap or poop - although when the food was set up at the buffet table, everyone thought he'd loaded his diaper... He hadn't, and the culprit turned out to be a whole bowl full of cauliflower. What parent sends in a bowl of cauliflower to their kid's school party?
So it was a fun day, really, just verrrrrry long and sugarloaded. T was mortified at the thought of her (nearly) whole family riding the bus home so we hoofed it back again at the end of the day. R passed out on my back so I felt like a real eskimo for about ten minutes, haaaha.
I am spoiled and so found myself feeling a little irritated that K's not here to just fix this problem for me. And to walk the dog.
The plan is for me to get the repair process going, and to lean on the parents tomorrow for a ride into Anchorage to get K's truck.
Aside from all of that, my INR this week is a high 3.3, so I'm back to weekly INR checks. blech.
The morning routine went well, right up to carseat buckles, until I put the car into gear and it didn't go. It's been below zero for a few days, I don't know if the brakes froze (I looked it up, it could happen) or if the transmission is shot. What it meant at 8:50 am was that the four of us were walking to school, just like people used to do about a hundred years ago. I think the distance is about 5 or 6 city blocks, but it's no fun with bad lungs and a 2-year-old at 5 below.
I'd volunteered to help set up Christmas-party stuff anyway, so R and I stayed at school all day, up and down stairs, back and forth between the girls' classrooms. Santa showed up, little gifts were exchanged, movies watched, and everybody loved having R around. He was waaaay too distracted to nap or poop - although when the food was set up at the buffet table, everyone thought he'd loaded his diaper... He hadn't, and the culprit turned out to be a whole bowl full of cauliflower. What parent sends in a bowl of cauliflower to their kid's school party?
So it was a fun day, really, just verrrrrry long and sugarloaded. T was mortified at the thought of her (nearly) whole family riding the bus home so we hoofed it back again at the end of the day. R passed out on my back so I felt like a real eskimo for about ten minutes, haaaha.
I am spoiled and so found myself feeling a little irritated that K's not here to just fix this problem for me. And to walk the dog.
The plan is for me to get the repair process going, and to lean on the parents tomorrow for a ride into Anchorage to get K's truck.
Aside from all of that, my INR this week is a high 3.3, so I'm back to weekly INR checks. blech.
Monday, December 17, 2007
mail dysfunction
Christmas is a tsunami and it's rolling in.
I tried all weekend to mail the box of presents to Bemidji - it didn't happen. I had some weird delays on Saturday, some unplanned events Sunday, then when I finally was standing in line at the Anchorage airport P.O. (for 45 minutes with 3 hungry kids and about 70 other humorless people), Misterguy produced a stinkbomb. I wasn't about to wait another 45 or even 5 minutes in line with that turn of events...
I sometimes try to remember what life was like before it turned into a string of gross-out stories. From what I hear the path ahead will be mostly a string of eye-rolling, expensive, baffling teenage moments. I'll probably blunder down that path and wish I could have the stinkbomb-years back!
Life teetered out of balance again last week, K got called to fly to Detroit until December 27th. He's since flown to Albuquerque and Bangor, with upcoming flights to New York, Georgia and Florida. I'm hoping there'll be a new-hire pilot soon who'll take his place at the bottom of the seniority pile.
I'm also hoping in my grinch-y little way that the smoking crowd downstairs will go away for the holidays. My bedroom is the Chamber of Secondhand Smoke, so I don't even go in there anymore. Turning my complaint around, I'm happy they're not brandishing any firearms or taking bongo lessons...
I wonder what I'll have to complain about when we move outta here.
I tried all weekend to mail the box of presents to Bemidji - it didn't happen. I had some weird delays on Saturday, some unplanned events Sunday, then when I finally was standing in line at the Anchorage airport P.O. (for 45 minutes with 3 hungry kids and about 70 other humorless people), Misterguy produced a stinkbomb. I wasn't about to wait another 45 or even 5 minutes in line with that turn of events...
I sometimes try to remember what life was like before it turned into a string of gross-out stories. From what I hear the path ahead will be mostly a string of eye-rolling, expensive, baffling teenage moments. I'll probably blunder down that path and wish I could have the stinkbomb-years back!
Life teetered out of balance again last week, K got called to fly to Detroit until December 27th. He's since flown to Albuquerque and Bangor, with upcoming flights to New York, Georgia and Florida. I'm hoping there'll be a new-hire pilot soon who'll take his place at the bottom of the seniority pile.
I'm also hoping in my grinch-y little way that the smoking crowd downstairs will go away for the holidays. My bedroom is the Chamber of Secondhand Smoke, so I don't even go in there anymore. Turning my complaint around, I'm happy they're not brandishing any firearms or taking bongo lessons...
I wonder what I'll have to complain about when we move outta here.
Friday, December 14, 2007
exciting stuff
(from www.eurekalert.org)
Profound immune system discovery opens door to halting destruction of lupus
Lupus Research Institute funds innovative hypothesis and scientific breakthrough
(New York, NY) A researcher funded by the Lupus Research Institute (LRI) has discovered an entirely new and powerful molecular switch that controls the inflammatory response of the immune system. The major finding, reported in the December 14th issue of the journal Cell, means that new methods can now be pursued to shut down uncontrolled inflammation, restore immune system regulation, and treat chronic autoimmune disorders such as lupus.
In autoimmunity, the immune system designed to fend off outside invaders mistakenly mounts an out-of-control destructive inflammatory attack against the body’s own tissues and organs. “We have found an essential switch that controls immune inflammation,’ said LRI award recipient, Greg Lemke, PhD, professor of Molecular Neurobiology at the Salk Institute.
In this study, Dr. Lemke builds upon findings that he and his team previously reported, when he noticed that mice genetically engineered to be born without a tiny family of three receptors—TAM receptor tyrosine kinases—developed an autoimmune illness similar to lupus in humans.
In the Cell article, Dr. Lemke now illustrates how these “TAM” receptors, under normal circumstances, are so critical in stopping the immune system from mounting an out-of-control inflammatory response against invading viruses and bacteria. When chemical messengers (cytokines) prompt immune cells to attack, he explains, they also activate TAM receptors, which then alert the cells to no longer react to the cytokines. This keeps the immune system orderly as well as relatively tranquil.
But in people with lupus and certain other autoimmune illnesses, the TAM signalling network may be seriously compromised. The switch to inhibit inflammation on this network may be absent—thereby resulting in immune system pandemonium.
People with lupus tend to have low levels of a blood factor (proteins S) that TAM receptors require to carry out their job. Giving modified versions of protein S, or its related TAM activator Gas6, to people with lupus may represent a means of halting the immune system destruction of precious organs and tissues. “This is definitely something we intend to investigate,” Dr. Lemke said.
Profound immune system discovery opens door to halting destruction of lupus
Lupus Research Institute funds innovative hypothesis and scientific breakthrough
(New York, NY) A researcher funded by the Lupus Research Institute (LRI) has discovered an entirely new and powerful molecular switch that controls the inflammatory response of the immune system. The major finding, reported in the December 14th issue of the journal Cell, means that new methods can now be pursued to shut down uncontrolled inflammation, restore immune system regulation, and treat chronic autoimmune disorders such as lupus.
In autoimmunity, the immune system designed to fend off outside invaders mistakenly mounts an out-of-control destructive inflammatory attack against the body’s own tissues and organs. “We have found an essential switch that controls immune inflammation,’ said LRI award recipient, Greg Lemke, PhD, professor of Molecular Neurobiology at the Salk Institute.
In this study, Dr. Lemke builds upon findings that he and his team previously reported, when he noticed that mice genetically engineered to be born without a tiny family of three receptors—TAM receptor tyrosine kinases—developed an autoimmune illness similar to lupus in humans.
In the Cell article, Dr. Lemke now illustrates how these “TAM” receptors, under normal circumstances, are so critical in stopping the immune system from mounting an out-of-control inflammatory response against invading viruses and bacteria. When chemical messengers (cytokines) prompt immune cells to attack, he explains, they also activate TAM receptors, which then alert the cells to no longer react to the cytokines. This keeps the immune system orderly as well as relatively tranquil.
But in people with lupus and certain other autoimmune illnesses, the TAM signalling network may be seriously compromised. The switch to inhibit inflammation on this network may be absent—thereby resulting in immune system pandemonium.
People with lupus tend to have low levels of a blood factor (proteins S) that TAM receptors require to carry out their job. Giving modified versions of protein S, or its related TAM activator Gas6, to people with lupus may represent a means of halting the immune system destruction of precious organs and tissues. “This is definitely something we intend to investigate,” Dr. Lemke said.
Saturday, December 08, 2007
I'm still laughing
We spent last night in Anchorage, my parents graciously invited us and it helped me get better quickly. K had a 10-hour round trip flight to some Aleutian island so he was tired.
Back home today in our cramped quarters, we had more of Mom's caribou soup for dinner, yummy stuff even if I can't really taste it. K got the kids' bedtime routine going before he went to hockey.
Our oldest child is a night-owl, and constantly reports to us "I can't sleep..." long after the other ones are out. Tonight was the same, "I'm too hot, blah blah blah" until I finally set her up with a make-shift bed on the floor.
Within minutes of thinking I'd finally closed out the bedtime epic, through the window came none other than the sound of someone's happy, carefree bongo drumming. At 10:45pm.
So I put on my shoes and coat, walked outside, stood by the idling car parked just below our windows, and asked them nicely to stop making so much noise. The guy in the front passenger's seat had a drum in his lap, but the guy in the back seat was the one who politely said they'd stop. Of course they stopped - and started right up again after I'd huffed and puffed my way back up the stairs. They kept it up for maybe five more minutes when I finally lost it and yelled out the window, "COULD YOU STOP YOUR DRUMMING PLEASE!!!!"
That was much more effective.
Back home today in our cramped quarters, we had more of Mom's caribou soup for dinner, yummy stuff even if I can't really taste it. K got the kids' bedtime routine going before he went to hockey.
Our oldest child is a night-owl, and constantly reports to us "I can't sleep..." long after the other ones are out. Tonight was the same, "I'm too hot, blah blah blah" until I finally set her up with a make-shift bed on the floor.
Within minutes of thinking I'd finally closed out the bedtime epic, through the window came none other than the sound of someone's happy, carefree bongo drumming. At 10:45pm.
So I put on my shoes and coat, walked outside, stood by the idling car parked just below our windows, and asked them nicely to stop making so much noise. The guy in the front passenger's seat had a drum in his lap, but the guy in the back seat was the one who politely said they'd stop. Of course they stopped - and started right up again after I'd huffed and puffed my way back up the stairs. They kept it up for maybe five more minutes when I finally lost it and yelled out the window, "COULD YOU STOP YOUR DRUMMING PLEASE!!!!"
That was much more effective.
Friday, December 07, 2007
sick sad sack
Newsflash, I got R's cold. I had one for most of the month of November but I'd recovered before getting hit by this one. It's sort of like the flu but not nearly as bad - I can tell because this only makes me cry while the flu made me want to die.
I can't smell or taste anything, my body aches, and I can't sleep because of the coughing and pain. I went to the Native Primary Care Clinic here in Wasilla and got some sympathy, antibiotics, albuterol, and pass-out syrup. Yay!
We worked things out so that my parents could take care of R & T today while I got LittleK to and from school out here. T had another dental appointment and this time it sounds like it hurts alot more. I'll just head into Anchorage after picking up LittleK, so I can down some liquid codeine and conk out at Mom's.
I can't smell or taste anything, my body aches, and I can't sleep because of the coughing and pain. I went to the Native Primary Care Clinic here in Wasilla and got some sympathy, antibiotics, albuterol, and pass-out syrup. Yay!
We worked things out so that my parents could take care of R & T today while I got LittleK to and from school out here. T had another dental appointment and this time it sounds like it hurts alot more. I'll just head into Anchorage after picking up LittleK, so I can down some liquid codeine and conk out at Mom's.
Saturday, December 01, 2007
Happy December
CONGRATULATIONS to the Ogles and the Renneisens!!!! Beautiful babies!!
Here we are together again!
After a couple of weeks of single-parenting, the veneer wears off in places. The kids start asking "When will DADDY be back??" as if I need more reminders that I'm the Dud Parent. I'm just happy that everybody's happy and some of the layers of stress have melted away. I guess the jet lag is wearing off because K took T to the sports complex for a run around the track.
R has a cold. He's a fountain of snot and I can't keep him from sneezing and coughing on everyone. We're just waiting, watching, wondering who'll be next to get it.
Today LittleK and I went to Daisy Girl Scouts. I felt sorry for the leader the last time we talked and I volunteered to be her permanent co-leader. Then I forgot to do all the things I said I'd do, like look into a different meeting place, pick up an activity guide, buy some things for the uniforms, etc. Procrastination, neglect... not exactly stuff I can blame on medication!
Speaking of medication, I'm taking 14 pills a day plus one early on Fridays, plus Advair puffs twice a day (I luuuuuv Advair). I see people once in awhile with portable oxygen tanks and it seems so strange now to think that I was in that boat.
Here we are together again!
After a couple of weeks of single-parenting, the veneer wears off in places. The kids start asking "When will DADDY be back??" as if I need more reminders that I'm the Dud Parent. I'm just happy that everybody's happy and some of the layers of stress have melted away. I guess the jet lag is wearing off because K took T to the sports complex for a run around the track.
R has a cold. He's a fountain of snot and I can't keep him from sneezing and coughing on everyone. We're just waiting, watching, wondering who'll be next to get it.
Today LittleK and I went to Daisy Girl Scouts. I felt sorry for the leader the last time we talked and I volunteered to be her permanent co-leader. Then I forgot to do all the things I said I'd do, like look into a different meeting place, pick up an activity guide, buy some things for the uniforms, etc. Procrastination, neglect... not exactly stuff I can blame on medication!
Speaking of medication, I'm taking 14 pills a day plus one early on Fridays, plus Advair puffs twice a day (I luuuuuv Advair). I see people once in awhile with portable oxygen tanks and it seems so strange now to think that I was in that boat.
Monday, November 26, 2007
days of family and thanks
I think this is the 14th day since K left. We miss him, especially since we haven't been able to chat online every day, and he hasn't been able to call either.
Thanksgiving was good, my sister made delicious food and there was just low-level kid chaos. R had a screaming tantrum right after we all finished our "I'm thankful for.." statements. He also had a major stink-bomb. I think he's a shock to other peoples' systems but I'm so used to his ear-splitting shrieks and rotten smells that he still seems like a sweet, dimple-faced cuddlebug to me, 80 percent of the time. 90.
T is not the best company for her cousins, it turns out. She's so intolerant of the smallest slights or irritations that visits go south in a hurry. She's especially vigilant about people not sharing well or asking permission to use her things... yeah.
Mom & John got to drive through the beautiful sites of Bryce Canyon, Zion National Park, and the Grand Canyon, before spending Thanksgiving in Albuquerque with Aunt Wanda and her family.
On Saturday night, I took the girls to the Nutcracker Ballet in Anchorage. R was a roadie for Gramma & Grampy at their fiddle dance. The ballet was beautiful and funny, so the girls had fun even if they were so hungry or uncomfortable in a fancy dress.
The only health news for me is that my bone-density scan was bad enough to warrant putting me back on Fosamax. I'll get that report today when I go to Anchorage for a meds refill. Brittle little me!
Thanksgiving was good, my sister made delicious food and there was just low-level kid chaos. R had a screaming tantrum right after we all finished our "I'm thankful for.." statements. He also had a major stink-bomb. I think he's a shock to other peoples' systems but I'm so used to his ear-splitting shrieks and rotten smells that he still seems like a sweet, dimple-faced cuddlebug to me, 80 percent of the time. 90.
T is not the best company for her cousins, it turns out. She's so intolerant of the smallest slights or irritations that visits go south in a hurry. She's especially vigilant about people not sharing well or asking permission to use her things... yeah.
Mom & John got to drive through the beautiful sites of Bryce Canyon, Zion National Park, and the Grand Canyon, before spending Thanksgiving in Albuquerque with Aunt Wanda and her family.
On Saturday night, I took the girls to the Nutcracker Ballet in Anchorage. R was a roadie for Gramma & Grampy at their fiddle dance. The ballet was beautiful and funny, so the girls had fun even if they were so hungry or uncomfortable in a fancy dress.
The only health news for me is that my bone-density scan was bad enough to warrant putting me back on Fosamax. I'll get that report today when I go to Anchorage for a meds refill. Brittle little me!
Tuesday, November 20, 2007
Tuesday
Tuesday, the day I wake up and the race is on.
This morning after getting the girls to the school door, I met with the mom who did bookorders for third grade last year. I am now (three months late) the official Bookorder Mom for 75 third-graders.
I waded through the rest of the day, picked T up from ballet, and bought groceries, noticing R fading fast around 5. He slept just a little before we pulled into the parking spot at the apartment - and then he barfed. I don't mind so much when kids barf on the floor or in the bath or whatever, but carseat barf is right up there with bed barf in grossout factor and cleanup time. Now I have to do the carseat-dismantle thing to scrub all the smelly stuff off, yay.
Needless to say I pushed onward through dinner, homework, and soccer-prep while watching R doze on the couch after his quick bath. I figured he'd be able to just sit on my lap during soccer for the hour we're there and he'd be fine - but he woke up and barfed on the couch. So I told LittleK soccer was off, she hit her stride in a tantrum all about how she'd already told her friends she was going to score goals, etc. I really almost never cave in to tantrums, but tonight, being Tuesday, I did.
We were twenty minutes late, she didn't score any goals, and R only had dry-heaves at half-time. He's back to his normal self, with just a faint smell. Now they're in bed and I'm avoiding the 150 bookorder sheets on the table.
So I have to wonder, since the dog ate poop last Tuesday, R barfed everywhere this Tuesday, what's in store for next week?
This morning after getting the girls to the school door, I met with the mom who did bookorders for third grade last year. I am now (three months late) the official Bookorder Mom for 75 third-graders.
I waded through the rest of the day, picked T up from ballet, and bought groceries, noticing R fading fast around 5. He slept just a little before we pulled into the parking spot at the apartment - and then he barfed. I don't mind so much when kids barf on the floor or in the bath or whatever, but carseat barf is right up there with bed barf in grossout factor and cleanup time. Now I have to do the carseat-dismantle thing to scrub all the smelly stuff off, yay.
Needless to say I pushed onward through dinner, homework, and soccer-prep while watching R doze on the couch after his quick bath. I figured he'd be able to just sit on my lap during soccer for the hour we're there and he'd be fine - but he woke up and barfed on the couch. So I told LittleK soccer was off, she hit her stride in a tantrum all about how she'd already told her friends she was going to score goals, etc. I really almost never cave in to tantrums, but tonight, being Tuesday, I did.
We were twenty minutes late, she didn't score any goals, and R only had dry-heaves at half-time. He's back to his normal self, with just a faint smell. Now they're in bed and I'm avoiding the 150 bookorder sheets on the table.
So I have to wonder, since the dog ate poop last Tuesday, R barfed everywhere this Tuesday, what's in store for next week?
Saturday, November 17, 2007
A Saturday, with money
Yesterday the Laramie house closed! I hope the new owners can turn it into a nicer place. We'll be using the money to pay off the debt we amassed since leaving Nome - talk about the weight of the world lifting.
R is glaring at me because I didn't offer him a bite of leftovers the right way. First he shrieked, then fake-cried, crumpled to the floor, and turned around for the glare-finale. He actually started the 'terrible twos' about six months ago, and his shriek is the worst part of it all. It's sort of like the sound an attacking Arctic Tern makes. His future may be in professional bird-calling.
LittleK has a Daisy Girl Scout tea party today. Since I don't ever make an effort to find babysitters, I asked my sister to drive the 45 miles out here just for this... The Tea Party Rules state that an adult must stay with the Daisy and please, no siblings. I just need to spiff up this place a little and lock up the dog since one cousin won't go near dogs. I'm afraid that if I bring Chena to the Daisy thing and keep him in the back of the minivan, he'll destroy something, since his MO now is Do All Misbehaving While The Man Is Gone.
R is glaring at me because I didn't offer him a bite of leftovers the right way. First he shrieked, then fake-cried, crumpled to the floor, and turned around for the glare-finale. He actually started the 'terrible twos' about six months ago, and his shriek is the worst part of it all. It's sort of like the sound an attacking Arctic Tern makes. His future may be in professional bird-calling.
LittleK has a Daisy Girl Scout tea party today. Since I don't ever make an effort to find babysitters, I asked my sister to drive the 45 miles out here just for this... The Tea Party Rules state that an adult must stay with the Daisy and please, no siblings. I just need to spiff up this place a little and lock up the dog since one cousin won't go near dogs. I'm afraid that if I bring Chena to the Daisy thing and keep him in the back of the minivan, he'll destroy something, since his MO now is Do All Misbehaving While The Man Is Gone.
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